Interesting Stuff – Keratoconus and my DALK Corneal Transplant https://corneanews.com My Journey from Diagnosis to Corneal Graft and Beyond Fri, 28 Aug 2015 14:44:00 +0000 en-US hourly 1 https://wordpress.org/?v=6.9.4 Have a Graft? In the Aisle Seat? Cover Your Eyes While Passengers Seating/Deplaneing! https://corneanews.com/2013/07/25/have-a-graft-in-the-aisle-seat-cover-your-eyes-while-passengers-seatingdeplaneing/ https://corneanews.com/2013/07/25/have-a-graft-in-the-aisle-seat-cover-your-eyes-while-passengers-seatingdeplaneing/#comments Thu, 25 Jul 2013 13:18:37 +0000 /2013/07/25/have-a-graft-in-the-aisle-seat-cover-your-eyes-while-passengers-seatingdeplaneing/index.html luggage

I do a bit of business travel, and I always ask for the isle seat.  I also carry a small overnight bag and laptop bag, checking anything else.

Since my corneal transplant, I have become acutely aware of the hazard to my eye/graft caused by inconsiderate passengers coming through the isle or packing their luggage into the overhead bin.  The problem has gotten out of control with the airlines charging $25-50/bag for checking.  People are bringing everything they can onto the plane – even knowing that they’ll likely not fit (and require *free* gate checking, possibly delaying the flight.)

Twice in a recent trip did I get hit on the head by the bottom of a roll suite case, a laptop and in one case, some kind of strange musical instrument.

So, if you have a graft, I suggest that you cover your eye while people lumber down the isle with all manner of luggage.  I actually put my head down on my recent flight – taking a hit to the back of my neck!  I’m considering wearing my safety glasses!

photo: USA Today

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Article: Things I learned by pretending to be blind for a week https://corneanews.com/2013/01/07/article-things-i-learned-by-pretending-to-be-blind-for-a-week/ https://corneanews.com/2013/01/07/article-things-i-learned-by-pretending-to-be-blind-for-a-week/#respond Mon, 07 Jan 2013 20:40:32 +0000 /2013/01/07/article-things-i-learned-by-pretending-to-be-blind-for-a-week/index.html photo by David Ball
photo by David Ball

I’ve been so busy at work lately that I’ve not been able to breathe…. but when I saw this article, I just had to share it with my readers especially since I work in this industry (user interface.)  I’m sure the low vision audience already knows this – but the others may find it very informative.

“… I started using a screen reader to see (I suppose I should say “experience”) how a blind user navigates a website..”

Read the entire post here.

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New – DALK Transplant Chronology https://corneanews.com/2012/03/12/new-dalk-transplant-chronology/ https://corneanews.com/2012/03/12/new-dalk-transplant-chronology/#respond Mon, 12 Mar 2012 21:25:57 +0000 /2012/03/12/new-dalk-transplant-chronology/index.html Quick post to let you know that I just made a new page which covers the chronology from my first Dr. appt to one year after the surgery.  Same posts, but in chronological order.

http://corneanews.com/about-kerataconus/chronology/

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Anime, Manga, Pop-Star Contact Lenses – A great way to damage your cornea https://corneanews.com/2011/10/22/anime-manga-contact-lenses-a-great-way-to-damage-your-cornea/ https://corneanews.com/2011/10/22/anime-manga-contact-lenses-a-great-way-to-damage-your-cornea/#comments Sat, 22 Oct 2011 09:30:46 +0000 /2011/10/22/anime-manga-contact-lenses-a-great-way-to-damage-your-cornea/index.html My daughter is totally into Anime and Manga characters, so I’m going to pass this through to my readers…  Please share this with those you know with tweens or teens.

Postscript:  Apparently these lenses are now making their way into the child pageant circuit.  Unbelievable!!!

FDA issues warning about decorative contact lenses

Silver Spring, MD – People who use decorative contact lenses as part of their Halloween costumes should consider risks such as an eye infection, cornea damage, vision loss and blindness, according to a consumer update released Oct. 12 by the Food and Drug Administration.

Classified as medical devices, decorative lenses must be specially designed and fitted to a patient’s eyes and are not “one size fits all,” according to FDA. The agency warns consumers to be wary of vendors that do not require a prescription or provide thorough instruction for the lenses.

[youtube http://www.youtube.com/watch?v=H45GYPAuTdg]

FDA recommends the following for people wearing decorative lenses this Halloween season:

  • Schedule an appointment with a licensed eye doctor, who can properly measure your eyes and provide a valid prescription.
  • Follow up with a doctor if you experience redness, pain or a decrease in vision.
  • Practice proper usage and storage instructions.
  • FDA also warns consumers about anime-inspired lenses, which typically are larger than normal contact lenses and not FDA-approved.
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NPR Covers Keratoconus https://corneanews.com/2011/07/11/npr-covers-keratoconus/ https://corneanews.com/2011/07/11/npr-covers-keratoconus/#comments Mon, 11 Jul 2011 17:14:39 +0000 /2011/07/11/npr-covers-keratoconus/index.html National Public Radio gives Keratoconus some much-needed publicity today in the US.  Sadly, they didn’t mention some of the most important points of the disease, such as DALK vs. PK, advances in contact lenses, or encouragement of organ donation.  Still, it’s great to have such a big increase in awareness.

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Post-DALK Transplant Topography – Graft https://corneanews.com/2011/07/02/post-dalk-transplant-topography-graft/ https://corneanews.com/2011/07/02/post-dalk-transplant-topography-graft/#respond Sat, 02 Jul 2011 13:24:40 +0000 /2011/07/02/post-dalk-transplant-topography-graft/index.html This is what my corneal topography looked like after 2 sutures removed, and led to the removal of two more.

Corneal Topography - Graft

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Cornea Day in San Diego – DALK Practice Expansion Recommended https://corneanews.com/2011/03/26/cornea-day-in-san-diego-dalk-practice-expansion-recommended/ https://corneanews.com/2011/03/26/cornea-day-in-san-diego-dalk-practice-expansion-recommended/#respond Sun, 27 Mar 2011 02:50:51 +0000 /2011/03/26/cornea-day-in-san-diego-dalk-practice-expansion-recommended/index.html I saw on the web today that Cornea Day in San Diego happened yesterday.  Edward J. Holland, MD and W. Barry Lee, MD did a panel on surgical techniques.  Dr. Holland had told me that he planned to do this, specifically that there was a section about how more corneal surgeons need to master the DALK/Big Bubble technique in order to leverage its advantages.

“Despite the technically challenging aspects of deep anterior lamellar keratoplasty, the big-bubble technique can and should be mastered, a presenter said here.  “Corneal surgeons must add DALK to their surgical scope,” W. Barry Lee, MD, FACS, said during a presentation at Cornea Day, which preceded the American Society of Cataract and Refractive Surgery meeting. “Get familiar with the big-bubble DALK steps.”   Dr. Lee discussed Anwar’s big-bubble DALK technique, stating that the main goal is to place an air injection posteriorly into the stroma to provide contrast between residual stroma and Descemet’s membrane. The surgeon should create a paracentesis to release pressure and inject a small air bubble to confirm the successful placement of the big bubble, according to Dr. Lee.”

I hope to ask Dr. Holland how the event went – and perhaps even get a copy of the transcript.

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Keratoconus Contact Lens Archeology https://corneanews.com/2011/03/20/keratoconus-contact-lens-archeology/ https://corneanews.com/2011/03/20/keratoconus-contact-lens-archeology/#respond Mon, 21 Mar 2011 02:11:53 +0000 https://corneanews.wordpress.com/2011/03/20/keratoconus-contact-lens-archeology/ Check out all the contact lenses I’ve tried in my journey with keratoconus. This is probably 1/3 the actual count.

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